Reports, Research, and Literature
NCI has produced and collaborated on several reports that address the special challenges facing young people with cancer. Information about cancer incidence, mortality, and survival in adolescents and young adults, together with selected research advances and activities, is available in the Snapshot of Adolescent and Young Adult Cancers. A chapter in NCI’s SEER Cancer Statistics Review also focuses on cancers unique to adolescents and young adults and the variations in disease patterns within this age group. A monograph details information about cancer incidence and outcomes in adolescents and young adults. Additional young adult cancer-related research and reports include:
- Adolescent and Young Adult Health Outcomes and Patient Experience (AYA HOPE) Study
This project will learn how best to obtain consent, collect medical records, and survey recently diagnosed AYA cancer patients in community settings in order to study treatment patterns and outcomes for these patients.
- A New Cancer Specialty: Follow-Up for Long-Term Survivors
A subset of survivors develop chronic health problems that result from the cancer treatments they received. To address their needs, a specialty area in cancer treatment and research has emerged.
- Adolescent and Young Adult (AYA) Biology Workshop
This workshop focused on acute lymphoblastic leukemia, as well as breast and colorectal cancers. Participants agreed more research is needed on the underlying biology of AYA cancers to learn whether age-specific differences influence the clinical behavior of these cancers.
- NCI Funded Research Portfolio
A database that contains information about research grant and contract awards made by the National Cancer Institute.
- NCI Research Resources
A directory of research tools and services for cancer researchers.
- NIH Funding Opportunities and Notices
Access to RFAs, PAs, and NIH medical and behavioral research grant policies and guidelines.
- Closing the Gap: Research and Care Imperatives for Adolescents and Young Adults with Cancer
This comprehensive report from the Adolescent and Young Adult Oncology Progress Review Group (PRG) is a collaborative effort between NCI and the Lance Armstrong Foundation. It outlines recommendations for improving the outcomes for adolescents and young adults with cancer.
- Journal of Adolescent and Young Adult Oncology
This is the first cancer journal dedicated to the adolescent and young adult-aged oncology patient population. It includes peer-reviewed articles and reviews that cover research in this area of oncology.